What we offer

The Children’s Epilepsy Nursing Service is a holistic service, providing for patients aged 0-19 years within Norfolk Community Health Care and who have an NHS Norfolk GP. We work in partnership with children and their families, who have or are likely to have a diagnosis of epilepsy.

The overall goal of managing epilepsy is to enable the child or young person and their family to lead a life as free as possible from clinical and psychosocial complications. This is achieved through access to the Children’s Epilepsy Specialist Nurses and other associated colleagues (Norwich Epilepsy Group – medical, psychological and technical support) who have effective links to schools, secondary care and other services accessed by the child and family. The particular needs of adolescents are managed in the “nurse-led young person’s epilepsy service”.

 

Who it’s for

The Children’s Epilepsy Nursing Service will:

  • Provide a service which is accessible, responsive and effective in a variety of settings appropriate to the child’s needs
  • Offer a holistic service for children and young people with epilepsy, their families and carers. This will be achieved by:
    • Providing detailed information and advice at an appropriate time during diagnosis and treatment by the use of resources available (leaflets, videos, DVDs etc)
    • Formulating packages of care following referrals according to holistic, individual needs. This may involve visits to home, nurseries, playgroups, schools and hospital
    • Attending defined epilepsy clinics held by acute and community paediatricians, where possible
    • Providing information and training as required to staff and carers in all areas of the statutory and voluntary sectors, including nurseries, playgroups and social services
    • Providing information and training to the UEA School of Nursing
    • Developing a link nurse network between primary and secondary care
    • Providing a “nurse-led young person’s epilepsy service” for patients on transfer to the adult epilepsy service
    • Providing a telephone helpline service for children, young people, families and carers
    • Identifying, initiating and or participating in audits and research and development activities to enhance service delivery
    • Act in accordance with Norfolk Health Safeguarding Children Team (ACPC) recommendations on Child Protection Procedures in relation to Child Protection issues

Priority will be given to:

  • Newly diagnosed patients, where there is a change in seizure pattern and or medication, monitoring medication regimes and side-effects
  • Patients with refractory epilepsy
  • Children prescribed emergency medication who require the provision of a care plan and training to parents, carers, settings

 

Referrals

Referrals for the Children’s Epilepsy Service primarily come from the Children’s Epilepsy Clinics held at the Norfolk and Norwich University Hospital and at Queen Elizabeth Hospital in King’s Lynn. 

We also accept referrals from community paediatricians, GPs and other healthcare professionals

 

Contact

Central Norfolk
Fabian Webb-Brown 
Fledglings, Bowthorpe Road, Norwich, NR2 3TU
Email: fabian.webb-brown@nchc.nhs.uk
Tel: 01362 655 259


West Norfolk
Lisa Pedder-Smith
St James’ Clinic
Extons Road
King’s Lynn
PE30 5NU
Email: Lisa.Pedder-Smith@nchc.nhs.uk
Tel: 01553 668 602

 

Useful links

Epilepsy Nurse - Young People